11am on Sunday 17th July 2022
Naomi Webborn of Dawsons Estate Agents, Swansea, South Wales and Agents Giving Regional Ambassador is raising funds and awareness for ‘tofs’ charity.
Naomi would like to spread the word of the charity and support all those families of children suffering from Oesophageal Atresia (OA) and Tracheo-Oesophageal Fistula (TOF) which are rare congenital conditions of the oesophagus (food pipe) and/or trachea (airway) that affects 1 in every 3,500 people.
Naomi has set up an event to get together any other ‘tof families’ in the South Wales area in the hope of offering much-needed support to those going through tough medical intervention. Naomi comments ‘Tofs on the Beach’ will be a lovely informal day where ‘tof families’ can come and enjoy the Gower coast and meet other ‘tof families’ close by, including herself and her family. Whilst the condition is rare and often repaired at birth, it’s a lifelong condition and to have the charity to support and guide us is so reassuring”.
No booking required!
From the awareness week in both 2021 and 2022, Naomi has reached out to 2 new tof families who got in touch due to the write-up they had seen in the local press and are now active members of the charity, receiving the support tofs provide and will be at the event in July 2022. Anyone who wants to join in, please just turn up, you will be very welcome!
Naomi’s son George was born by emergency C-section assuming all was well just birth complications, it soon transpired that George was unable to swallow and was diagnosed with oa tof within an hour of being born
Naomi and her husband Darren were told of this rare unknown condition and that George would need an operation asap to fix this, they then spent 3 long weeks in hospital recovering (for some this can be months, so they consider themselves very lucky).
Many often comment ‘but he george fixed now right?’ The answer is no, this is a lifelong condition that George has to manage himself, every day. For many tofs it can bring with it respiratory issues, choking episodes or the onset of barrets oesophagus.
George is so amazing and mature about his condition but can often get down about daily medications he has to take and being ‘different’ (his words). At the age of 11 George has spent more time in hospital than many adults, but takes it all in his stride, as parents Naomi & Darren are immensely proud.
Agents Giving and the Guild of Property Professionals wish you a great fundraising awareness for Tofs this summer.